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‘Feeling like you can't do anything because you don't know where to start’—Parents' Perspectives of Barriers and Facilitators to Accessing Early Detection for Children at Risk of CP

Early detection of cerebral palsy (CP) risk is possible from 12 weeks corrected gestational age (CGA) using standardised assessments; however, up to half of children at risk are not referred early, missing out on early intervention. We investigated the barriers and facilitators to accessing early intervention from the perspective of parents of children who did not receive services by 6 months CGA.

Confident and Trustworthy Model for Fidgety Movement Classification

General movements (GMs) are part of the spontaneous movement repertoire and are present from early fetal life onwards up to age five months. GMs are connected to infants' neurological development and can be qualitatively assessed via the General Movement Assessment. In particular, between the age of three to five months, typically developing infants produce fidgety movements and their absence provides strong evidence for the presence of cerebral palsy.

Changing the focus of cerebral palsy

Cerebral palsy is not only the result of birth trauma and the lack of oxygen supply during delivery.

Congenital anomalies in cerebral palsy: Where to from here?

We have identified that CP registers often do not have quality data on congenital anomalies, necessitating linkage with congenital anomaly registers.

A special supplement: Findings from the Australian Cerebral Palsy Register, birth years 1993 to 2006

A downward trend in rates of CP in those born extremely preterm was evident over at least three consecutive periods across all three regions.

An international survey of cerebral palsy registers and surveillance systems

These findings will facilitate harmonization of data and collaborative research efforts, which are so necessary on account of the heterogeneity and...

Comparing risks of cerebral palsy in births between Australian Indigenous and non-Indigenous mothers

Indigenous infants have a higher risk of CP than non-Indigenous infants, especially postneonatal CP.

Interobserver reliability of the Australian Spasticity Assessment Scale (ASAS)

The Australian Spasticity Assessment Scale complies with the definition of spasticity and is clinically feasible in paediatric settings

How low can we go? Recognizing infants at high risk of cerebral palsy earlier

This paper is a timely reminder that we must recognise infants at high risk of cerebral palsy earlier using evidence-based assessments.