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Healthcare SAVVI: Exploring health literacy and parents' experiences in supporting the health of children with intellectual disability

Research on the health literacy of parents with children with intellectual disability is limited. Understanding parents' healthcare skills and needs is essential for improving children's health and developing effective support. In this study we aimed to (1) explore the health literacy skills of parents that enabled them to support the health needs of their child with intellectual disability and the factors influencing these skills, and (2) identify opportunities to support parent health literacy.

Citation:
Nevill T, Blackmore AM, Keeley J, Yeap Z, Lindly O, ……. Downs J, Skoss R. Healthcare SAVVI: Exploring health literacy and parents' experiences in supporting the health of children with intellectual disability. Patient Educ Couns. 2026;145.

Keywords:
Health literacy; Health management; Health navigation; Intellectual disability; Parents

Abstract:
Research on the health literacy of parents with children with intellectual disability is limited. Understanding parents' healthcare skills and needs is essential for improving children's health and developing effective support. In this study we aimed to (1) explore the health literacy skills of parents that enabled them to support the health needs of their child with intellectual disability and the factors influencing these skills, and (2) identify opportunities to support parent health literacy.